“De-novo” consultation: Evaluation of an outpatient's clinic dedicated to early diagnosis of parkinsonian syndromes

J. Ruggeri (1, 1) , L. Mariani (1, 1) , S. Aix (1, 1) , M. Bonnet (2, 1, 1) , F. Cormier (1, 1, 2) , C. Corvol (1, 1, 2) , P. Dodet (1, 1) , D. Grabli (1, 1) , A. Hartmann (1, 1, 2) , C. Hubsch (1, 1) , L. Lacomblez (1, 1, 2) , E. Roze (3) , M. Welter (1, 1, 2) , Y. Worbe (1, 1, 2) , M. Vidailhet (1, 1, 2) , B. Degos (1, 1)

1 CHU Pitié-Salpêtrière [AP-HP]
2 ICM - Institut du Cerveau et de la Moëlle Epinière = Brain and Spine Institute
3 Service de neuropédiatrie et maladies métaboliques [CHU Robert-Debré]

In the absence of specific clinical signs, imaging or biomarkers, the differential diagnosis of degenerative parkinsonian syndromes may be difficult at early stages of the disease. To reduce the risk of misdiagnosis or delayed diagnosis and referral to multiple medical centers at disease onset, easier access to expert centers should be available. To improve the initial care of parkinsonian patients, the Parkinson's disease Expert Center (PEC) at Pitié-Salpêtrière Academic Hospital has set up a specific outpatients clinic with short waiting times dedicated to the diagnosis of early Parkinson's disease and related disorders. Methods The PEC setup first identifies requests for diagnostic confirmation of parkinsonian syndromes, then specific outpatients clinic visits are scheduled weekly, with examinations carried out by neurologists at the PEC on a rotating schedule. Data from the first year of the new procedure were analyzed retrospectively through self-administered questionnaires sent to patients seen during this period. The main outcomes were to confirm the ability to keep to short delays for patients’ examinations and to assess patients’ satisfaction with the setup. Results Both study outcomes were achieved. The creation of an outpatients clinic dedicated to the early diagnosis of parkinsonian syndromes allowed shorter delays before the first examination of 5 weeks instead of several months. Keeping to the weekly schedule and limited time taken for each visit was also achieved. Following this initial outpatients visit, diagnosis of a parkinsonian syndrome was clinically confirmed or further specified in 80% of cases. A survey of patients’ satisfaction showed a rate of over 91% in terms of the timing and course of clinical examinations at our PEC. Discussion/Conclusion This study of our quality-improvement program for Parkinson's disease management has shown that specific consultations with shorter waiting times aiming to allow early specialized assessment of parkinsonian syndromes is beneficial for patients and reduces the risk of delayed diagnoses.

Mots clés: Expert center; Early diagnosis; Patient care management; Parkinson's disease; Parkinsonian syndrome

Domaines: Neurosciences [q-bio.NC]

J. Ruggeri, L. Mariani, S. Aix, M. Bonnet, F. Cormier, et al.. “De-novo” consultation: Evaluation of an outpatient's clinic dedicated to early diagnosis of parkinsonian syndromes. Revue Neurologique, 2017, 173 (1-2), pp.55 - 61. ⟨10.1016/j.neurol.2016.12.031⟩. ⟨hal-01472834⟩